Resources

In addition to the resources and information produced by Heart Kids NZ, you can also find a list of services organisations and related links that may be useful to heart families

Staying in Hospital

Staying in hospital

Preparing your child for hospital Parents feel worried and anxious when their child needs to go to hospital. These feelings are normal and natural. A stay in hospital whether for a few hours or several weeks can be a constructive, maturing experience for the whole family. Here are some ways in which you and your child can be helped to reduce the stress of a visit to hospital.

Long QT Syndrome

Long QT Syndrome

Long QT syndrome (LQTS) is an uncommon hereditary disorder characterised by abnormal electrical activity in the heart. It affects mostly children and young adults with frequent faints or even sudden death. More information can be found on Auckland District Health Board’s website.


Rheumatic Heart Disease

Rheumatic Heart Disease (RHD) occurs when Rheumatic Fever inflammation causes permanent damage to the heart. Heart Kids supports families with children who acquire as a child. Further information can be found in our Rheumatic Heart Disease Brochure


Finding out your unborn child has a heart condition

Congenital heart defects can be detected and diagnosed before birth, as early as at 11 weeks of gestation. To ensure immediate access to appropriate and timely medical attention and intervention, doctors sometimes recommend that expectant mothers give birth at Auckland City      Hospital, next to Auckland Children's Hospital where the National Paediatric and Congenital Cardiac

 Unit is located.

Our brochure for prenatal parents aims to provide information to hopefully answer some questions

expectant heart parents may have about the possible next steps from diagnosis in terms of medical

Preparing your child for hospital

Preparing your child for hospital


Parents feel worried and anxious when their child needs to go to hospital. These feelings are normal and natural.

A stay in hospital whether for a few hours or several weeks can be a constructive, maturing experience for the whole family. Here are some ways in which you and your child can be helped to reduce the stress of a visit to hospital.

A brochure on what to expect when staying in hospital

File size 51.244 KB

A document about staying in hospital

File size 51.244 KB

Additional support and information for PRENATAL parents

We understand it can be stressful relocating to Auckland at an already overwhelming time.


This brochure is designed to take some of this stress away. Our aim is to provide practical advice to help your transition to Auckland go as smoothly as possible. Once you have arrived in Auckland, you may wish to contact Heart Kids.


They cover:


  • Accommodation in Auckland
  • Everyday needs
  • Emotional support
  • Caring for your children
  • Who pays?


Brochure 2 for Prenatal Parents

File size 682.657 KB

Brochure 1 for Prenatal Parents

File size 281.307 KB