Many parents of heart children say the most frustrating thing is that people assume after their kiddies have had their surgeries, they're all fixed. "Luna will never be fixed," explains mum Olivia, "she will be sick for life." Olivia and Luna have spent more than 50 days in hospital recently, after her latest open heart surgery, Luna's fourth. Watch the video below to find out what it is really like having a child with a heart defect.
This week is Heart Kids Awareness Week and activities are being planned around the country to make people aware about the issue so many heart children and heart adults endure.
Created on: 3 June 2019